• AAA provides reliable and accessible answers to questions about driving safety for seniors.
• Aging and Disability Resource Center serves as a single point of entry into the long-term supports and services system (LTSS) for older adults and people with disabilities. This federally sponsored site provides a direct link and information about resources for every state in the country.
• Aging Care presents a helpful article with good explanations and answers to questions about supplies and equipment. The site is an online community that connects people caring for elderly parents to other caregivers, personalized information, and local resources.
• Aging Life Care Association links caregivers to certified professionals, formerly known as geriatric care managers, who partner with families who need help plan and coordinate an elderly loved one’s care. They offer expert assistance when making decisions or solving problems with issues, like home care services, housing, government entitlements, or medical management; with legal, financial, or safety concerns.
• Aging with Dignity is a non-profit, inspired by the life and work of Mother Teresa of Calcutta, to promote better care for those near the end of life. Their Five Wishes document, dubbed “the living will with soul,” is an advanced directive form used all over the world. User-friendly and easy-to-complete, it is available in print and online; in 27 different languages, and in Braille.
• Cancer Legal Resource Center is a national, organization that champions the rights of people with disabilities. They provide free and confidential information and resources on cancer-related legal issues to cancer survivors, caregivers, employers, health care professionals, and others coping with cancer.
• Care Pathways is a nurse-run site that educates and supports families when making decisions about senior care and housing options. Their on-line database and access to professional advice facilitate the difficult search for home care, assisted living, retirement homes, nursing homes, and other long-term care facilities.
• The Centers for Disease Control and Prevention provides links to reliable resources and information about ways to prevent motor vehicle injuries.
• Disability.gov is a federal government website that has links to programs and services offered by numerous government agencies. It is designed as a one-stop website where people with disabilities, and their caregivers, can easily find the help they need. Included is a state and local resource map, which makes it easy to find disability-related information in specific parts of the country.
• Dosecast is a free downloadable medication management app.
• Easter Seals offers a range of resources for military and veteran caregivers, and for caregivers of those with disabilities. They provide services at 400 sites across the US for children and adults, including adult day care, in-home care, and camps for special-needs children. Services vary by site.
• Eldercare Locator is a public service of the US Administration on Aging. It connects all older Americans and their caregivers with information on how to find senior services anywhere in the country. The website links those who need assistance with state and local Area Agencies on Aging, known as “Triple A’s”, and other community-based organizations that provide services on a sliding fee scale to older adults and their caregivers. Connect with resources in your local area, toll-free at 1-800-677-1116.
• ElderCare Matters provides up-to-date, useful articles about elder care/senior care services, and answers to elder care questions are provided by ElderCare Matters’ Partners. Accredited by the Better Business Bureau, their nationwide network of 600+ elder care experts include aging life-care professionals, accountants, aging-in-place specialists, money managers, elder law attorneys, estate planning advisors, financial and investment advisors, insurance professionals, reverse mortgage lenders, senior move managers, tax advisors and experts from other fields who work with seniors and their families.
• Family Voices is a national grassroots network for families with special-needs children and youth. They provide resources and support to: make informed decisions; advocate for improved public and private policies; build partnerships among families and professionals, and serve as a trusted resource on health care.
• Healthcare Hospitality Network is a nationwide professional association of nearly 200 nonprofit organizations that provide lodging and support services to those who are receiving medical treatment far from their home communities. To search for lodging visit this webpage.
• Homeowner's HOPE Hotline (by phone: 888-995-4673) connects caregivers with counselors who are experts in foreclosure prevention and trained to set up a personalized plan of action. Counselors educate and offer support to overcome immediate financial issues... at no cost. The Homeowner Resources section is a link to Hope LoanPort, a web-based tool that streamlines home retention applications on behalf of homeowners at risk of foreclosure.
• The Hospice Foundation of America offers education, information, and publications on end-of-life, hospice care, and grief. They provide confidential, personal responses to questions submitted on-line through their “Ask an Expert” function.
• MedCoach Medication Reminder is a free downloadable medication management app.
• Medicare is the official US government site for Medicare that provides Medicare beneficiaries and their caregivers with information on this health care program for seniors. They offer a wide range of free publications in print, podcast, and eBook formats. Access a helpful Discharge Planning Checklist on the following webpage.
• Medisafe Medication Reminder and Pill Organizer is a free downloadable medication management app.
• Move Seniors is a national online database for the nation's only secure registry of residential service providers specializing in work with senior clients and their families. Site visitors can use the directory to locate local, certified, and insured specialists for help with planning, downsizing, organizing, packing, moving, real estate, home care services, and age-in-place home design.
• National Adult Day Services Association speaks as the national voice of the adult day service community. They offer practical guidance on how to choose an adult day center, and a detailed site-visit checklist to help judge which site is right for you and/or your loved one.
• The National Association of Senior Move Managers assists older adults and families with the physical and emotional demands of downsizing, relocating, or modifying their homes. They host a national referral network of nearly 500 senior move management companies throughout North America.
• The National Hospice and Palliative Care Organization provides free resources to help people make decisions about end-of-life care and services. They answer questions about hospice and palliative care; offer links to hospices in your area, and give specific guidance on managing symptoms and pain. The resource section offers a library of downloadable publications, including information on Advanced Directives, Healthcare Proxies, and Living Wills.
• The National Transitions of Care Coalition are industry leaders who have created resources to help professionals and consumers better understand and manage issues associated with transitioning from one health care setting to another. For patients and caregivers, they offer free tools on topics, like medication management; guidelines for a hospital stay; and protecting caregiver health.
• Next Step in Care provides free, downloadable information, practical guides, and checklists to help family caregivers and health care providers plan safe, smooth transitions from one health care setting to another: from home to hospital; hospital to home; to home with home care; or to in-patient rehab. Written succinctly in two formats, one for professionals and another for family caregivers, these tools highlight critical aspects of care such as medication management, discharge planning, and preparing for the next level of care.
• The Patient Advocate Foundation provides patients with arbitration, mediation, and negotiation to settle issues with access to care, medical debt, and job retention related to their illness. Details of the many programs they offer are found in the Patient Services section, or call toll-free: 1-800-532-5274
• Share the Care works to prevent caregiver burnout with their very practical handbook and training courses on how to create and maintain a successful “family of caregivers.” User-friendly resources are now available online. Research and the popular response has proven the effectiveness of this comprehensive, group-based caregiving model.
• The Hartford allows you to find resources and recommendations for addressing the issue of driving with someone who has dementia.
• Healthfinder.gov is a federal government website the features links to more than 6,000 government and nonprofit health information resources, on hundreds of health-related topics. Also available are practical, personalized health tools, such as health calculators; activity and menu planners; recipes, and online check-ups. Information is provided in English and Spanish.
• Video Caregiving provides visual educational materials to family caregivers managing disabilities like Alzheimer’s disease and stroke. Documentary-style videos follow real-life caregivers as their stories unfold. They offer useful tools, and reassure caregivers they’re not alone in their struggle.
• Your Eldercare Consultants is a group of experienced social workers and certified geriatric care managers, highly trained in all aspects of aging and senior care. They provide educational materials via their website; they also consult on immediate needs and develop a longer-term plan of care.

​

 

 

Note: These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by the Caregiver Action Employee Network and Caregiver Action Network, of any of the products, services or opinions of the corporation or organization or individual. The Caregiver Action Employee Network and Caregiver Action Network bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.